SAVE THE DATE! Becker Education and Engagement Day will return on September 28th, 2024!

What is Becker Education and Engagement Day (BEED)?

The Becker Education and Engagement Day (BEED) began in 2023 when a group of individuals living with Becker, advocacy groups, clinicians, and researchers in Becker came together to design an opportunity for those living with Becker to connect. The 2023 and 2024 events gathered the Becker community across locations in the United States. In 2025 BEED was held at five locations across the country in September and brought together over 450 Becker community members. The event is designed to foster a sense of community for people living with Becker and their families by providing opportunities to hear from experts in Becker care and research, and most importantly, to meet others affected by the neuromuscular disorder.

2025 Agenda Topics

  • Becker Overview & Care Providers
  • Cardiac Screening and Care in Becker
  • Building your Becker Care: Panel
  • Occupational Therapy: Addressing Activities
    of Daily Living
  • Physical Therapy: Movement and Exercise
  • PT and OT Panel
  • Navigating Life with Becker: Panel
  • Relationships & Communication: Panel (Adult Track)
  • Changing the Narrative Around Independence & Equipment: Panel (Adult Track)
  • Employment & Financial Planning (Adult Track)
  • Transition from Pediatric to Adult Care: Provider Panel (Pediatric Track)
  • Caregiver Panel: Parenting a Child Living with Becker (Pediatric Track)
  • School Resources (Pediatric Track)
  • Building a Becker Community
Read the BEED event newsletter

Testimonials

“In our Becker community, every story is a spark. Every connection, a lifeline. Together, we are rewriting what resilience looks like. We are creating hope for our Becker community. We are unstoppable.”- BEED 2025 Attendee
``This event was the only time I’ve ever been presented with a clear understanding of how Becker differs from Duchenne, and what changes to care need to made.``- Individual living with Becker
``It was inspiring to hear from other people who face the same daily challenges I do. One of the aspects of having a rare disease is a sense of isolation, but it was encouraging to see how we all cope with BMD in surprisingly similar ways.``- Individual living with Becker
``Thank you to the entire Becker community for coming together and giving me hope for my son's future``- Parent to child living with Becker
``I really just want to say thank you for everyone who helped organize this event. So often I have felt alone with this disease and for the first time I have an overwhelming sense of relief that I have others to relate to and who will all support each other. The impact of this event is greater than you know.``- Individual living with Becker

2025 Locations

BEED returned in September 2025 to five locations, Seattle, WA, Sacramento, CA, St. Louis, MO, Philadelphia, PA, and Orlando, FL.

Sponsors